Tuesday, April 28, 2015

Day 2 has begun and will be a repeat of day 1, so expect to be here until mid-afternoon. 

Day 1 uneventful.  No nausea, headache or any other complaints.  Ate and drank plenty and finished up around 2. 

When Luke to his uncles's e assembled his lap steel and played a while.  Ate a couple bowls of cereal and fell asleep in front of the TV.  Sometime between 5 and 6 he disappeared to his bedroom and slept until morning.

Spirits are good.  Weather is good and he has his lap steel.  What more can he ask for?

Chemo for the first two days is cytarabine.  He’s had cytarabine before but this time around it’s a much lower dose.  He needs to get IV fluids two hours before and two hours after getting it's a long . 

Dr. August (oncologist) and Dr. Myers (transplant) stopped by.  Apparently Luke is of greast interest with the CART clinical trial team because of him having leukemia cells in the bone as well as the bone marrow.    

Good news from the clinical coordinator.  Novartis has seen a lot of variability in t-cell production but she said Dr. Myers had heard from Novartis they are getting very good production.  Looks like infusion is still a go for the 6th.


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